All tagged autism

Comfort zone

“The heat is pressing in on us; a solid, slippery thing. I feel like I could cut it with a butter knife. The noise, rich smells and visual abundance of the souk have blurred into irrelevance because I am wholly focused on Spike and his distress.”

Interscotia

“Our routines are in tatters and we eat at odd times. We chug fatly towards New Year’s Eve. There is simply nothing to do except slide towards January 1st, particularly this year. And when the clock ticks over from 23:59 to 00:00, well, the year is over.”

Letter from lockdown

“Coronavirus cast its shadow over our chalk-edged island. WhatsApp groups thrummed with digital missives speculating about an Italian-style lockdown and my heart sank. Of all the Italian-style things I enjoy (coffee, ice cream, salad dressing), stringent lockdown measures are way down the list.”

Word arrows

“Perhaps mindful that his words do not always have their desired effect, he gesticulates often. Finger writing fragments of his words which seem to hang in the air, like the trail of light that lingers when a sparkler is pulled through the dark.” 

Blyton

“My school was nowhere so dramatic as the Cornish coastline. The nearest sea was the one frozen in the chalk of the nearby Downs which undulated their way from east to west.”

Hardcore

“I lay in bed planning escape routes in the event of a domestic fire, and had wild dreams in which I had to stay hidden from unseen eyes, or else the world would end.”

Bubbles

“When Spike was smaller, I remember giving him gifts that he liked so much, he couldn't look at them directly - only squint at them using his peripheral vision.”

Sometimes

“Sometimes, when we are asked "How was your day?" or "How are you?", we want to cast aside the "fine" that is bubbling on our lips and actually tell you.”

Future

“When we met with Spike's paediatrician for the first time, the words poured out of us like milk. We were grateful for a chance at certainty after months of carrying around this leaden question. "Is he autistic?".”

Pablo

“I took 10 minutes out of my day to watch the first episode of "Pablo" on CBeebies. It's a ten minute show, mixing live action and animation to tell the story of 5 year old Pablo, who is autistic.”

Light

“Spike lay sleepy amongst the rumpled sheets of our bed. He squinted, raised his hand next to head and opened and closed his pudgy starfish fist. He had made the Makaton sign for "light".”